Intrahepatic Cholangiocarcinoma
Ruby’s journey began when she was diagnosed with intrahepatic cholangiocarcinoma, a rare and aggressive bile duct cancer originating in the liver. She shares her experience of navigating this diagnosis, beginning with the subtle changes she noticed in her body just two months prior to her diagnosis. Initially, she experienced digestive issues that were alarming; she could no longer eat as she used to and felt a persistent sensation as if food was stuck in her chest. These symptoms were accompanied by significant weight loss and a decline in her concentration, prompting her to seek medical attention.
Upon receiving her diagnosis from her doctor, Ruby was referred to an oncologist, where a treatment plan was established immediately. Her treatment commenced with chemotherapy, leading to a positive response indicated by imaging that showed a reduction in tumor size, which made her a candidate for surgery.
Ruby underwent a four-hour surgery as a significant milestone, yet her journey did not end there. As the months progressed, she learned that despite the initial success, the tumor had developed further, now involving the lymph nodes, revealing the resilience of this type of cancer.
It was a pivotal moment during her treatment when her doctor informed her of a grim prognosis, stating that she had only six months to live. Seeking a second opinion, she met with Dr. Hirschfeld, a leading oncologist, which she describes as a transformative encounter. From this meeting, Ruby felt a renewed sense of hope and trust in her treatment plan. Dr. Hirschfeld offered a personalized approach, customizing her regimen to ensure it was suitable for her unique health conditions. Ruby notes the importance of this individualized treatment, emphasizing that larger hospitals often operate under strict protocols that may not allow for such flexibility in patient care.
Beginning in December 2016, Ruby underwent a combination of chemotherapy and immunotherapy, which yielded improvements in her condition over the following year. Throughout this grueling process, she appreciated the caring and supportive atmosphere fostered by the team at Dr. Hirschfeld’s practice, especially praising the consistency of the nursing staff. In the video interview Ruby reflects on the dedication of her healthcare team, noting that every interaction with her doctor was meaningful—each word uttered was impactful and intentional, contributing positively to her treatment experience.
Ruby understands that hers is a long-term battle with cancer. She acknowledges the need for continuous monitoring and evaluation of her condition. And Ruby points out that this journey is not about a singular solution but rather an ongoing process of adapting to the disease’s unpredictability.
Ruby emphasizes the importance of living with the awareness of her condition while remaining proactive in her treatment. She likens the cancer to a volcano, suggesting that she must manage it carefully to prevent eruptions—metaphorically speaking. This perspective showcases how Ruby has chosen to approach her life and treatment; she emphasizes a methodical and patient-centered approach, focusing on incremental improvements rather than overwhelming changes.

Through her detailed recounting of experiences, Ruby provides insights into the complexities of dealing with a serious illness, emphasizing the need for personalized care, the emotional rollercoaster of hope and despair, and the pivotal importance of having a supportive medical team. Her story stands as a testament to resilience, highlighting the power of hope and the impact of compassionate care in the face of challenging circumstances.